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Mining Psychological Support Needs and Communication Patterns in Chronic Disease Management: A Large-Scale Web Crawling Study

  • Xinyi Wang
  • , Jiaxin Zhang
  • , Qingchuan Li*
  • *Corresponding author for this work
  • Harbin Institute of Technology
  • Southern University of Science and Technology

Research output: Chapter in Book/Report/Conference proceedingConference contributionpeer-review

Abstract

With the increasing prevalence of chronic diseases, patients often face long-term psychological distress that is not fully addressed within formal healthcare settings. Online patient communities have become important spaces for sharing illness experiences and seeking psychological support. This study analyzes large-scale user-generated discussions from chronic disease–related online communities to examine patients’ psychological support needs and positive communication practices. Using web crawling and text analysis methods, the study identifies four recurring psychological concerns among patients, including social isolation and unmet support needs, disruptions to daily life and self-identity, symptom-related psychological distress, and frustration with healthcare systems. The analysis further reveals four forms of psychological support perceived as effective, namely symptom management support, medical information support, emotional feedback support, and online interaction support. In addition, the study summarizes supportive language patterns and tonal features associated with positive engagement, including self-disclosure, expressions of gratitude, advice-oriented responses, and professional language. The results provide empirical evidence to inform the design of digital health systems capable of offering psychologically supportive interactions in chronic disease management.

Original languageEnglish
Title of host publicationHCI in Business, Government and Organizations - 13th International Conference, HCIBGO 2026, Held as Part of the 28th HCI International Conference, HCII 2026, Proceedings
EditorsFiona Fui-Hoon Nah, Keng Leng Siau
PublisherSpringer Science and Business Media Deutschland GmbH
Pages290-307
Number of pages18
ISBN (Print)9783032300430
DOIs
StatePublished - 2026
Externally publishedYes
Event23rd International Conference on Engineering Psychology and Cognitive Ergonomics, EPCE 2026 - Montreal, Canada
Duration: 26 Jul 202631 Jul 2026

Publication series

NameLecture Notes in Computer Science
Volume16729 LNCS
ISSN (Print)0302-9743
ISSN (Electronic)1611-3349

Conference

Conference23rd International Conference on Engineering Psychology and Cognitive Ergonomics, EPCE 2026
Country/TerritoryCanada
CityMontreal
Period26/07/2631/07/26

Keywords

  • Chronic Disease Management
  • Communication
  • Online Patient Communities
  • Psychological Support
  • Web Crawling

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